She already showed signs of inflammation as a result of this fistula and had suffered multiple lung infections prior to surgery. “In this case, it was making her very sick. “This can be very difficult to diagnose, as it was in Maisyn’s case,” Worhunsky said. He entered through the side of Maisyn’s neck and closed the connection between her trachea and esophagus. Worhunsky, M.D., general and thoracic pediatric surgeon with the children’s hospital, and assistant professor of surgery at University of Kentucky College of Medicine. Once Maisyn was admitted, the 11-month-old soon went into a three-and-a-half-hour surgery with David J. “But panic, worry, fear - every emotion possible went through both my husband and I in the very moment of her diagnosis.” “We finally knew why she had been coughing so much,” Kaitlin said. The realization that this was very serious quickly set in. They were calling in the pediatric ENT and the pediatric surgeon - I became completely hysterical.” “Within three minutes of the completion of her swallow study, I was told that she needed to be admitted to the ED and they were not comfortable with her taking anything by mouth. “I went into complete panic mode,” Kaitlin said. Maisyn’s parents were in shock, and scared for her life, because this diagnosis meant that their child had been unknowingly aspirating liquids into her lungs since she was born - for almost an entire year of her life. This type of TEF, type H, only occurs in about 4-5% of all tracheoesophageal anomalies. A fistula, or a small abnormal tube connecting one tubular organ to another, connected Maisyn’s trachea and esophagus together causing food and liquid contents to spill into her lungs every time she ate or drank. Maisyn was diagnosed with a rare, life-threatening condition called a tracheoesophageal fistula (TEF) type H. But once they were referred to the Kentucky Children’s Hospital to participate in a swallow study, the pathologist began to see the issue.
Kaitlin and Troy took Maisyn to the pediatrician, and at first, they did not suspect anything was seriously wrong. My daughter became very sick, and I knew something was wrong.” “She sounded constantly congested and nasally, and this progressed over the span of about four months. “She began choking each time she would drink or eat something of thin consistency, like water, breast milk or pureed baby food,” Kaitlin said. Everything seemed normal for the first several months of her life.īut, slowly, Maisyn’s parents began noticing that something was not quite right.
(Aug. 19, 2022) - Kaitlin and Troy Clem were overjoyed to bring their fourth child, Maisyn, home on May 25, 2021, and begin the journey of raising their newborn.
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